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Cancer Resources | Oncolink, National Cancer Institute, Captain Chemo, Hospice Net…

Provided By Parents, For Parents.

Cancer Resources

Parents of children with pediatric cancer confront one of the most difficult situations they may ever have to face. We understand this. And we know that by offering what help we can - what we've learned through the course of our own difficult experience - we can help make the process just a little easier for you and your family.

Here you'll find resources that can be invaluable as you proceed. You can also follow Lainie’s Angels on Facebook or Twitter for up-to-the minute resource offerings.

If you need anything further, please don't hesitate to contact us. Our angels are always here to help. If you know of other cancer resources that you feel should be added to our list, don’t hesitate to reach out to us and let us know.

Helpful Sites

    1. Oncolink

      Provides current and reliable cancer-related information to patients, families and health care providers regarding treatment options, research, coping, nutrition, etc..Very comprehensive. Has links to numerous related resources and websites.

    2. National Cancer Institute

      The federal government's main agency for cancer research, training and advocacy. The site is a thorough resource, and a good place to start your research. Has information on any type of cancer and its treatment, finding and understanding appropriate clinical trials, and contains links to support groups.

    3. Memorial Sloan Kettering Cancer Center

      From the Home page, go to "Pediatric Cancer Care." Here, you'll find information specific to a hospital and its health care providers. Also contains clear explanations of various pediatric cancers and treatments, practical information for families - including a guide to communicating with your health care team - and sections for kids and teens.

    4. Captain Chemo

      An interactive educational site created by a teenager with cancer in order to explain the disease, its treatment and its side effects to children and teens, using factual text, games and animated video.

    5. A Resource Guide for College Students Living with Chronic Health Issues

      This is a wonderful resource guide on how to live with chronic health issues tailored specifically for college students.

    6. Ontario Parents Advocating for Children with Cancer (OPACC)

      Ontario Parents Advocating for Children with Cancer (OPACC) is a registered charity comprised of representatives from parent groups, parent contacts, and other family members from across Ontario, Canada. Their members are parents, guardians, survivors, or close relatives of a child/teen diagnosed with childhood cancer. OPACC's overall goal is to be the parent voice for families with children diagnosed with cancer across the Province of Ontario. OPACC is also a partner of Lainie's Angels.

    7. National Childhood Cancer Foundation

      This foundation raises funds to support the Children's Oncology Group (COG), a major research network that strives to help all children with cancer gain access to the most comprehensive and current care. You can access lists of COG locations throughout North America, Australia and Europe on this site. There is also a section on specific childhood cancers, with a good explanation of clinical trials.

    8. National Children’s Cancer Society

      This non-profit organization provides emotional and medical support to children with cancer and their families. The site has links to several resources (listed categorically, and very extensive). Families can also download applications and guidelines for receiving financial assistance for expenses related to cancer treatment.

    9. National Coalition For Cancer Survivorship

      This patient-led advocacy organization provides information to empower patients and families about practical and political issues, such as research funding, access to care and clinical trials. The site describes the roles of government agencies and how public policy can affect treatment.

    10. Cancer Source For Kids

      This site was developed by pediatric oncology nurses to help children, teens and parents learn about specific types of cancers, and to provide age-appropriate information on testing, diagnosis and treatment. An especially good site for siblings and young family members.

    11. Hospice Net

      This comprehensive site details hospice services and provides a guide for deciding on a program. Also contains information for patients regarding pain control, as well as excellent resources for caregiver support and bereavement (specific to children and teenagers).

    12. Candlelighters

      A non-profit organization providing support, education and advocacy for families of children with cancer and the professionals caring for them. Links to Hopelink Clinical Trial service, which helps patients find clinical trials to meet their needs. Also contains links to other websites, with topics including assistance with medications, pain control, complementary therapies and support groups.

    13. Caringbridge

      An online service that allows you to create a free personalized web page to keep friends and family in touch and informed during important life events, including medical treatment.

    14. Tufts-New England Medical Center

      Floating Hospital for Children. A full-service Pediatric Facility.

    15. Northwest Sarcoma Foundation

      For patient and family education and support.

    16. The Cure Our Children Foundation

      A centralized Internet information site to assist parents, families and caregivers of children who have cancer and other life threatening diseases.

    17. The Liddy Shriver Sarcoma Initiative

      The Liddy Shriver Sarcoma Initiative works with various organizations, events, and institutions that help improve the quality of life for people dealing with sarcoma. Central to their mission is the goal of increasing public awareness of sarcoma, especially focusing on research initiatives and fundraising to support these efforts around the United States. Additionally, the Liddy Shriver Sarcoma Initiative is responsible for publishing an online, bimonthly newsletter for patients, caregivers, doctors, nurses, and anyone else affected by sarcoma.

    18. Alex's Lemonade Stand Foundation

      This non-profit organization funds critical research efforts for pediatric cancer, in addition to providing family services such as their Travel Fund Program, Treatment Journals, and Childhood Cancer Symposium.

    19. Theravive

      Theravive is a network of licensed therapists and psychologists committed to helping people receive the best mental health care available. Through building bridges with others, we continually strive to lower mental health stigma.